Turning Respite Into Real Relief
When you’re a caregiver, the idea of taking a break can feel impossible. And even when you do get some time off, it can be hard to know what to do with it. Should you nap? Run errands? Try to relax? Many caregivers end up feeling guilty or like they “wasted” their precious free time. A new study is helping change that.
Researchers at the University of Utah evaluated an innovative program called **Time for Living and Caring (TLC)** — a virtual tool that helps dementia caregivers plan and make the most of their respite time. And the results? Surprisingly powerful.
Why This Matters
Over 11 million Americans provide care for a loved one with dementia. It’s rewarding, yes, but also exhausting. Caregivers often face high stress, declining health, and little time for themselves. While respite (a break from caregiving) is one of the most requested supports, research shows that caregivers often feel unsatisfied with how they use that time.
What is TLC?
TLC is a 16-week online intervention that includes:
- A calendar to schedule regular respite breaks
- Weekly virtual coaching to set personal, achievable goals for your time off
- A dashboard to track your progress
- Educational tools to help you prepare for and get the most from respite
What Did the Study Find?
- Caregivers used more respite time
Weekly respite increased from about 8 hours to over 13 hours by the end of the program. - Caregivers were happier with how they spent their breaks
At the start, less than half were happy with how they used their time. After TLC, that jumped to 73%. - Scheduling makes a difference
Regularly scheduling respite time helped caregivers feel more in control and less anxious. - Coaching was the key
The weekly coaching feature was the most effective part. It helped caregivers reduce or maintain their anxiety levels, especially when paired with scheduling tools. - When support stopped, anxiety returned
Once the program ended, anxiety levels began to rise again. This shows the importance of ongoing, consistent support.
What This Means for Caregivers
TLC shows that respite isn’t just about getting time off. It’s about how you use that time. With a little planning, even short breaks can feel more fulfilling, refreshing, and effective.
What’s The Call to Action
We need more support systems that help caregivers plan, personalize, and make the most of their respite.
If you’re a caregiver, consider:
- Scheduling your time off in advance
- Choosing activities that bring you joy or peace
- Asking for help to make it happen
You can schedule more respite with your “tribe”. Check out Respite Co-op
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